April 18, 2012

• Adventures in Lyme Disease Continue

     I'm in the process of titrating up to the full dose of Nystatin tablets the Lyme Whisperer has prescribed. I'm experiencing symptoms I'm told are the result of the die-off of these little micro-organisms in my system. I've been timing the increases so the worst of the symptoms are apparent during my weekend off. I'm emotionally labile. Two Friday nights in a row I have come home and cried because of little things: no seltzer to drink, not hearing from my younger son for a few weeks. Not big things, but not things I can seem to surmount when I am fatigued and hurting. 

     The Lyme Whisperer has told me to bump up when I'm feeling better after the initial increase in symptoms from the increase. I had a pretty good day yesterday, but I had CPR in the evening for recertification and there had been a bit of chaos at work. Today I am hurting and tired. But I made it to the pool and exercised for half an hour.  I've debated bumping up tonight but have decided to wait and see how I feel tomorrow. I'd like to be up to the two tablets four times a day that I'm aiming for by my next visit. I just am not the most adept at assessing how I am. 

     I spoke with my PCP (Primary Care Provider) about this new diagnosis and his opinion. We had an articulate conversation and he encouraged me to try it. He doesn't see anything dangerous in what is proposed. I was encouraged by his concern and heartened when he said," I'd like to see you better." We discussed the lack of scientific "proof" around Chronic Lyme Disease. But mostly we talked about how there is nothing else to try, that I don't fit any other diagnostic algorhythm, and it doesn't look as if it could hurt. 

  Just in my hands, arms, and the rest of me. But my hands and arms are the worst.

  blessings abound

   

  • 6:27 pm
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