July 11, 2012

• Noticing

    So much of how treatment for Lyme seems to proceed is dependent on how I have been responding to treatment. Usually when I speak with The Lyme Whisperer, it is in the morning, eightish, and I am still feeling not quite fully awake as I ready my work station for the days calls. I'm always asked how I've been feeling. Tired is the most common response. Last time he asked me if he'd pushed me to my limit yet and I responded, no.  Reaching my limit means I have been reduced to a sobbing mess, angry and tired and sad. Overwhelmed by the circumstances at hand. So far my coping skills have held.  So far about a week and one  half have passed since the latest antibiotic increase. I've noticed that the day after an antibiotic day yields more fatigue and more "Lyme brain." The weekend finds me feeling as if I could do something fun, like go to the Farmer's Market, but then I'm at the Farmer's Market and my balance is off, my limbs feel leaden and I am all of a sudden drained of energy. Then spouse trundles me into the Jeep and we go home where I rest and wonder how I could have mis-read my energy so badly. I just don't have any reserves. My antibiotics are taken on Monday, Wednesday and Friday. Monday my energy felt pretty good and work went well even though I was busier than a one-armed paper hanger. Tuesday I was more tired. Today, a Wednesday, I felt better and was able to deal with work but had a little more brain fog. When I came home I poured a glass of seltzer for myself and then took a plate to the recliner when I meant to take my glass. Wacky stuff like that. And I am having more trouble with word finding. Overall, pretty manageable. 

     I am taking a trip to Syracuse this weekend. A friend invited me to visit her son with her. Nick is an unofficial Son Number # and is dear to my heart. I'm working four days in a row this week in order to have Friday off. So far so good. It's a five hour drive from here to Syracuse. I'm packing seltzer and acceptable proteins to help me deal with the yeast free diet while I'm there. I'm hoping I'll be up to walking in the Farmer's Market and visiting. I'm keeping my fingers crossed that this will be so.  

    In the meantime, when I drive home in the evening, I am the subject of my own music video, accompanied by Florence and the Machine. The best part of the drive unfolds in the woods along the river on Lincoln Road. Cool, green and unencumbered with signage. 

  Blessings abound

  • 6:55 pm
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